Tuesday, June 1, 2010

Long time no talk...

I know it has been a looonnnggg time since I have blogged. Life has been far too busy for me. I am hoping things calm down soon. But I doubt they will. 


There is big news happening in our lives lately. There is a new operation called the Liberation Operation. As a result of studies, it appears that MS, rather than being a disease, is more likely a symptom of CCSVI (chronic cerebrospinal venous insufficiency).  CCSVI is essentially the blockage of the outlet arteries from the head with iron deposits.  The liberation treatment is surgery to remove the blockage / iron from those arteries.  Depending on how advanced the MS is, a person’s condition may stabilize, or improve – sometimes significantly.  McMaster has a professor who supports it, and will do the test for CCSVI – for a price, and put it towards a study, but won’t allow you to take the results to a clinic to have the treatment done.  The government will not provide support for this treatment yet. Our Canadian government is still "testing". 


Steve and I decided not to wait to the turtles in Canada and stared looking elsewhere for help. We eventually settled on a doctor in Albany New York. The costs involved are $10,000. To help offset the costs we are fundraising. 


More to come about the fundraising this evening.....
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