We did it! We had enough money and we went to the United States and had Steve's narrow veins opened!
About six months ago there was a program on TV about Multiple Sclerosis. A Doctor Zamboni in Italy figured out that many people with Multiple Sclerosis have narrow veins in their neck which leads to a build up of iron in the brain which leads to many symptoms that mimic MS.
This procedure is temporarily being called Liberation Treatment and the symptoms were translated to being called Chronic Cerebrospinal Venous Insufficiency or CCSVI. The liberation treatment starts with a doppler MRV on the veins to see if they are narrow and blocked. If this is so, then an angioplasty is performed, thus opening up the veins and allowing the blood to flow liberally.
As soon as we heard about this we looked into places to get this liberation treatment done. It seemed at the beginning that only European countries were performing this procedure and for a hefty $80,000. I was wondering what body parts of mine I could sell to raise the money! I was upset. I really wanted to try this procedure to see if Steve would feel better.
Everytime we heard of a doctor performing the liberation treatment, the place was shut down. Apparently Canada doesnt think that all the European countries studies were good enough and want to do their own. For the record the studies will start in the fall and will take a couple of years. I do not want to wait that long. Who knows what will happen to Steve's health by then.
People with MS are being forced to lok all over the world for help to get better. It isn't fair.
One day Steve heard of a place in the United States that will perform the procedure. He called and got an appointment! The appointment was only two months away and we needed at least $6,000. Ugh.
With help from a few good friends we raised enough money! I will forever be grateful to these people. God blessed me with these people and I thank Him all the time.
Every day is feeling small changes. He is really tired which is supposed to be normal. I think yesterday he slept 18 out of 24 hours! Every day we see another small change for the better! It was so worth it!
interview with cnn & maddy’s first race. - here’s a little interview i did with cnn for father’s day. also, this past weekend the liz logelin foundation held it’s annual 5k/10k/fun run in a heavily ...